Disability
Community for All Tool Kit
on the Human Policy Press (Centre on Human Policy) site
I haven't had chance to read this yet, but at first glance it looks very
powerful and useful. If you'd like to provide a couple of sentences reviewing
the kit I'll consider publishing them here.
Questions to guide the development of a support plan
by David Pitonyak
on links and resources page of the imagine site
I haven't had chance to read this long article - but reading the first
few pages suggests it is a useful document.
"What Will She Be Like?"
by David Wetherow
one of a series or articles on the Community Works site
This is described as -a letter to a new mom, who was asking "What will she be like?"
Interdependent Living: a healthy and Healing Lifestyle
by Bill Rush
one of a set of articles on www.allenshea.com
This is about the difference between 'independent' and 'interdependent' living.
The hardest thing I have ever done
by Emma Loach
on the Guardian newspaper site
Emma Loach describes choosing to have an abortion because her unborn baby
had Downs Syndrome. As you might expect this isn't an easy read, but the
issues it raises are important.
Congratulations on the birth of your new baby
by Terry and Elizabeth Edwards
on the Down Syndrome - A Parent's Resource site
"The day Shelby was born was without question the toughest day of our lives."
"My guess is the "Doctor" must have missed the class in med. school on bed side manner."
An article for new parents, but which says a lot about labelling and professional
power.
Welcome to Holland…
by Emily Kingsley
part of a series of articles
on the Down Syndrome - A Parent's Resource site
"I am often asked to describe the experience of raising a child with a disability."
"A women recounts her family's journey in a well loved, often told story."
A short article.
Erik’s Story - One day at a time
by Ingrid Bizio
part of a series of articles
on the Down Syndrome - A Parent's Resource site
"I still vividly remember that cold January morning five years ago, when our
lives changed forever."
A short article by Erik's mother.
Notes for parents (when your child engages in difficult behaviours) [pdf document]
by David Pitonyak
one of the articles on the Paradigm site
David Pitonyak provides ten specific ideas for parents in a person centred
theme.
What Do I Do Next...? Supporting A Person With Difficult Behaviors
by David Pitonyak
one of the articles on the Paradigm site
David Pitonyak writes about positive approaches to behaviour that people
find difficult.
Personal Assistance - What It Is and What It Is Not
by Judith Snow
one of the series of articles on Inclusion.com
Don't make the mistake of thinking you don't need to read this because you
think you've already understood what personal assistance is.
The Madrid Declaration
“NON DISCRIMINATION PLUS POSITIVE ACTION RESULTS
IN SOCIAL INCLUSION” from the European Congress on Disability
Pathfinders - Making A Way From Segregation To Community Life [pdf document]
by Connie Lyle O’Brien, Beth Mount, John O’Brien and Fredda Rosen
part of a series of articles on the Responsive Systems Associates page
on the Center on Human Policy site.
"Could students graduating from special education whose current best option is
placement in a segregated adult facility fi nd paid and volunteer work in community
settings, become involved in social and recreational activities in their neighborhoods,
and develop new friendships and associations in their workplaces and neighborhoods?"
The Logic of Snoezelen?
by Joe Whittaker and John Kenworthy
one of around 40 articles on the abstracts page of the Bolton Data for Inclusion site (also available as a pdf file)
"
Can anyone help us to understand the Logic of Snoezelen?"
" "Jewel-bright lights", "perfumed air", "coloured bubbles" and "soft music", we are told, can "artificially" re-create many of the sensations and experiences we put so much time, money and energy into removing in the first instance."
Autism - Getting the Truth Out
This site isn't what it seems at first. A powerful piece of work - stick with it.
(The site was prompted by this one: www.gettingthewordout.org )
No Handicapped In Heaven?
by Johnny Crescendo
one of many articles on the Life from the Ragged Edge section of the Ragged
Edge site which itself contains many articles.
This short and direct article speaks about how funerals are handled. Quote: "Have you ever been to a funeral of a disabled friend? I've been to lots recently. Here's a warning to us all."
From 'Passing' to 'Coming Out'
by Candice M. Lee
one of many articles on the Ragged Edge site.
This is a short and direct article about Candice M. Lee's personal experience.
Quote: "There are rules for passing. First, I must come up with a nice, short,
palatable, cocktail-party explanation of my disability to set people at ease
when they ask. Nothing too scary. And then, I must never mention it again."
Touch, Our First Language
by Micheline Mason
on www.michelinemason.com
This short and easily read article discusses touch as a human need. It
also covers points about abuse, policies that reduce touch, and issues around gender.
The Breaking of Relationships
by Micheline Mason
on www.michelinemason.com
Quote: "We are at a fork in the road in terms of our approach to disability and
disabled people. One road continues trying to alter disabled people from
the 'outside',
whilst society in general stands aside and waits for the miracles to happen.
The other road moves towards accepting the fact of disability as part of
ordinary life, and works to help society value and include disabled people
as they are."
Mourning has Broken
by Dave Hingsburger
on SILC Threads (Ohio Statewide Independent Living Council)
A typical powerful Dave Hingsburger article.
Quote:"I asked, seeing that she was
calm now, if we could just send her off to bed.
...Stunned silence met my words. No, I was told, she "needed to be consequenced'...
Quote:"...any human being, regardless of gender, who drinks too much of
power will become addicted to cruelty..."
Articles on www.isja.org.uk
The links listed on the directory page displayed above take you to other websites. Articles on www.isja.org.uk (this site) are listed separately on the 'on-site articles' page, grouped by author rather than subject. The links below should take you directly to relevant items on that page:
Diving for a Better World
by Judith Snow
Personal Assistance - What It Is and What It Is Not
by Judith Snow
Prologue and The Story
by Judith Snow
Seeing Differently
by Judith Snow
Thoughts on Self-Determination
by Judith Snow
Notes on the gifts and assets that people who are vulnerable to rejection commonly
bring to community
by Judith Snow
Good places to look for more
The Person Centred Planning page of this site.
The Citizen Advocacy page of this site
The Inclusive Education page of this site.
The Service Quality page of this site.
The Social Theory page of this site.
The Center on Human Policy site.
The Responsive Systems Associates page of the Center on Human Policy site.
The Inclusion Network/Press site.
The Inclusive Solutions web site.
T
he www.allenshea.com site
David Pitonyak's imagine site
The Community Works site
The Ragged Edge site